AUCD features MNLEND story about sensory tents in Minneapolis parks

Sarah Thorson (left), Erica Chua (center), and Elise Niedermeier (right), all from the Minneapolis Park and Recreation Board. Niedermeier is a MNLEND Fellow.

The Association of University Centers on Disabilities (AUCD) website featured MNLEND Fellow Elise Niedermeier‘s collaboration with the Minneapolis Park and Recreation Board to bring sensory tents to the Minneapolis parks this summer. Sensory tents can help people, such as children with autism, cope with sensory overload. The article is titled, “MNLEND Fellow Leads Creation of Sensory Tents in the Minneapolis Parks.”

AUCD is a membership organization that supports and promotes a national network of university-based interdisciplinary programs; ICI is a member of this organization. The Minnesota Leadership Education in Neurodevelopmental and Related Disabilities (MNLEND) Program is an ICI center.

Institute on Community Integration welcomes visit by Russian partners on Peer-to-Peer Project

Anna Chistokhina (left) and Zoya Berdnikova (center) from the Social Innovation Fund in Krasnoyarsk, Siberia, traveled to ICI in January for a scouting trip as part of the U.S.-Russia Peer-to-Peer Project, a collaborative project with ICI’s Global Resource Center on Inclusive Education (GRC). The project, funded by the U.S. Embassy in Moscow, is developing systems to support the community inclusion and employment of young adults with disabilities.

Chistokhina and Berdinkova, along with GRC co-directors Renáta Tichá (far right) and Brian Abery, visited sites focused on transition from secondary school to community living and employment by young adults with disabilities, and discussed similarities and differences between service and support approaches in the U.S. and the Russian Federation. Among the sites were the Success Beyond program in St. Paul (pictured), Lionsgate Academy, and The Arc of Minnesota; they also shadowed professionals who support young adults with disabilities in community-based settings. This was part of the preparation and planning for a larger Russian delegation coming to ICI in April.

The Peer-to-Peer project is a continuation of a long-standing partnership between Krasnoyarsk State University and ICI. “What I really enjoy about this continued collaboration between Krasnoyarsk and Minnesota is how sincere and dedicated our Russian partners are to making a difference in the lives of children and young adults with disabilities back home,” says Tichá.

Minnesota DHS renews Positive Supports contract with RTC-CL

The Minnesota Department of Human Services (DHS) has renewed its contract with the Research and Training Center on Community Living (RTC-CL), at the Institute on Community Integration, for continuation of training and technical assistance to build capacity for implementing positive support practices across the state. The $1.2 million contract extends the current work begun in 2012 by RTC-CL’s  Minnesota DHS Systems Change and Capacity Building Through Research, Training, and Technical Assistance Projects, work that enhances Minnesota’s capacity to support community living for individuals with disabilities and/or mental illness. Minnesota DHS has made a new five-year commitment to working with RTC-CL, beginning with a two-year agreement for Fiscal Years 2018 and 2019. The project directors at RTC-CL are Amy Hewitt and Rachel Freeman. “This DHS contract provides an important vehicle for building the capacity for person-centered practices and positive supports across the state of Minnesota and to improve the lives of people with intellectual and developmental disabilities using large-scale systems change,” says Freeman.

The new contract’s primary areas of focus include expanding implementation of statewide person-centered practices and positive behavior support through regional training and technical assistance; building service professional capacity using DirectCourse, the online competency-based training system operated by a partnership of the RTC-CL and Elsevier; facilitation, coordination, and implementation support for Minnesota’s statewide plan for building effective systems for implementing positive practices and supports; technical assistance and training for organizational change to promote the use of person-centered practices within Minnesota DHS; building and sustaining in-state training capacity for person-centered thinking and person-centered planning; development of Web-based resources on best practices in implementing person-centered and positive behavior supports; and coordination of communities of practice for person centered practices and positive behavior supports.

ICI supports cross-cultural identification, screening, and intervention for autism

Hall-Lande at CDC headquarters in Atlanta where she trained in 2016.

Two weeks ago, the U.S. Centers for Disease Control and Prevention (CDC) renewed the appointment of ICI’s Jennifer Hall-Lande as the Minnesota Act Early Ambassador, extending it through October 2018 to spread the CDC’s “Learn the Signs, Act Early” message throughout the state.

CDC trained her to develop and expand on ICI’s Act Early work of promoting early identification, screening, and intervention for autism and related neurodevelopmental disabilities in culturally- and linguistically-diverse communities across Minnesota. That work expanded this fall when the Association of University Centers on Disabilities (AUCD), through a subcontract from CDC, awarded her $137,000 for a new nine-month project, “Learn the Signs, Act Early” Formative Research Evaluation of Developmental Books. ”

This project helps the Minnesota Act Early team to evaluate the effectiveness of our materials in promoting parent-led developmental monitoring, and it’s also a great opportunity for building a strong professional partnership with the AUCD team and UCEDDs in New York and Indiana,” she says. UCEDDs (University Centers for Excellence in Developmental Disabilities) are a federally-designated network of programs similar to ICI that are housed in major universities and teaching hospitals across the country to promote a nation in which all Americans, including Americans with disabilities, participate fully in their communities.

“This grant adds to ICI’s growing portfolio of ‘Learn the Signs, Act Early’ projects, including our Outreach Work and State Systems Grant: Minnesota Act Early,” says Hall-Lande. Also, in September, ICI’s Minnesota Act Early team partnered with Minnesota Help Me Grow to train another group of cultural delegates to conduct Learn the Signs outreach in their communities. The newly-trained delegates join the ranks of an existing “Minnesota Learn the Signs, Act Early” statewide network of approximately 100 trained delegates who use the Act Early materials and resources to help parents monitor child development. In this way, delegates connect with families in their communities to support early identification.

ICI promoting community inclusion for young Russians and Americans with disabilities

Renáta Tichá and Brian Abery in Moscow in 2015.

On October 1, the College’s Institute on Community Integration (ICI) received a one-year, $100,000 grant from the U.S. Embassy in Moscow to create virtual and in-person platforms for dialogues between professionals and parents who support young Russians and Americans with disabilities. The goal is to develop opportunities and strategies for inclusive community living and employment (independent or semi-independent housing and community participation) for young adults with disabilities in both countries. Specifically, the grant will support 16- to 21-year-olds in the Twin Cities and in the Siberian city of Krasnoyarsk. Known as the U.S.–Russia Peer-to-Peer Project: Developing Systems to Support the Employment and Community Inclusion of Young Adults with Disabilities, the collaboration will include electronic exchanges on inclusive community living and employment. There will be dual person-to-person exchanges between Russia and the U.S. (including conferences in each country) and dialogues about how culture affects community inclusion in both countries. The exchanges will feature seven adults in each country, including professionals, family members, and at least one person with a disability representing each country. The project will form learning communities to serve as resources for successful transition approaches and strategies, author a guide outlining key practical steps for inclusive employment and community living, and create online modules in these areas available in both countries.

The Russian collaborator on the project is the Social Innovation Fund in Krasnoyarsk. Project director Renáta Tichá and colleague Brian Abery (pictured together in Moscow in 2015) have worked on various projects with people in Krasnoyarsk, including staff from Krasnoyarsk State Pedagogical University, and look forward to expanding those relationships. “This project is an important continuation of our work with professionals in Krasnoyarsk who support children and youth with disabilities. This new opportunity provides a venue for collaboration with our colleagues on transition issues for young adults with disabilities from school to community,” says Tichá. U.S.–Russia Peer-to-Peer is a project of ICI’s Global Resource Center for Inclusive Education, of which Tichá is also director.

Poetz to receive National Leadership Award from AUCD

Photograph of Cliff Poetz, self-advocate for people with disabilities, at the Minnesota State Capitol.
Cliff Poetz, self-advocate for people with disabilities, at the Minnesota State Capitol.

Cliff Poetz of the College’s Institute on Community Integration will receive the Leadership in Advocacy Award from the Association of University Centers on Disabilities (AUCD) during the AUCD 2017 conference in Washington, DC on November 5-8. The award is presented to an outstanding individual or family member who has exhibited exceptional leadership and self-advocacy skills in the area of developmental disabilities.

Poetz’s self-advocacy began in 1970. Like many people with developmental disabilities at the time, he lived in a large institution and was labeled “retarded.” But his institution was in Minneapolis and “the city was alive with talk of social change and civil rights,” he recalls. Poetz protested the discrimination, people listened, and the media took notice. He has influenced social change and legislation every since. An active and effective advocate, he helped launch Advocating Change Together in the late 1970s and People First Minnesota in the 1980s. He went on to serve as a board member of numerous organizations and has had advisory roles with a number of foundations and academic centers.

“I only wish my parents could have seen how my life has turned out,” he reflects. “They would not believe how I live on my own, how I travel all over the country, how people with impressive titles and jobs know me and listen to me. Self-advocacy has given me wonderful opportunities. I see my involvement in continuing to organize self-advocacy groups as one way that I can help other people have wonderful opportunities of their own.”

NCEO receives $10 million to establish new center to support inclusive practices for students with significant cognitive disabilities

Sheryl Lazarus, principal investigator.
Kristin Liu, co-principal investigator.

The National Center on Educational Outcomes (NCEO) at the college’s Institute on Community Integration (ICI) has been awarded a $10 million grant from the U.S. Department of Education’s Office of Special Education Programs to establish a National Technical Assistance Center on Inclusive Practices and Policies. The new center will be called The TIES Center: Increasing Time, Instructional Effectiveness, Engagement, and State Support for Inclusive Practices for Students with Significant Cognitive Disabilities. Sheryl Lazarus will be the principal investigator and Kristin Liu the co-principal investigator.

The purpose of the TIES Center is to create sustainable changes in school and district educational systems so that students with significant cognitive disabilities can fully engage in the same instructional and non-instructional activities as their general education peers while being instructed in a way that meets individual learning needs.

The TIES Center will be funded for five years, $2 million per year. Subcontractors for the TIES Center identified by NCEO are University of North Carolina Charlotte, University of North Carolina Greensboro, University of Cincinnati, CAST, University of Kentucky and the Arizona Department of Education.

“This is wonderful opportunity for NCEO and its partners to do important and exciting work on the inclusion of students with significant cognitive disabilities,” says Lazarus. Future project activities will support increased student engagement and improved learning outcomes for students with significant cognitive disabilities.

What the TIES Center Will Do

The primary outcome of the TIES Center is to improve the quality of instruction for students with significant cognitive disabilities in inclusive environments through the use of existing curriculum and instructional materials. The new center will also provide models and coaching to both general education and special education teachers to create more inclusive opportunities. In addition the TIES Center will support changes to inclusive practices and policies within partner state and local education agencies.

The TIES Center has identified five goals to support its outcomes:

  1. Develop professional learning communities in partner state and local education agencie
  2. Develop coaching models for implementation of resources, inclusive practices and communicative competence.
  3. Improve the efficiency and effectiveness of existing resources.
  4. Support parents to become partners in the practice of inclusion for students with significant cognitive disabilities.
  5. Support systems change within the leadership of state and local education agencies for implementation of inclusive practices.

Established in 1990, NCEO is a federally-funded technical-assistance center that supports states and districts on issues related to inclusive assessments, particularly for students with disabilities, English learners (ELs) and ELs with disabilities.

Promoting employment for people with disabilities

ICI's Jeffrey Nurick speaking at a conference.
ICI’s Jeffrey Nurick speaking at a conference.

Employment for people with disabilities is a growing trend and researchers and staff from the College’s Institute on Community Integration are spreading the word. For example, on June 19-22, Kelly Nye-Lengerman presented four sessions at the National APSE (Association of People Supporting EmploymentFirst) conference in Portland, Oregon. They were: “Full Speed Ahead: Promoting Youth Readiness for Employment and Education with PROMISE”, “How Are We Doing with Implementing Good Practice in Employment Supports?”, “Power of 5: Moving the Needle: The Words We Use Matter”, and “Bringing Employment First to Scale: State of the Science.” Meanwhile, on June 22, Jeffrey Nurick (pictured) was in Duluth as a panelist on the discussion, “Living the Dream: Employment First in Action,” at the Minnesota Age & Disabilities Odyssey conference.

ICI’s Gulaid among panelists for Voice of America town hall on autism and vaccines

 

ICI's Anab Gulaid (in blue headscarf) is interviewed on camera at the University of Minnesota's Humphrey School of Public Affairs on July 8, 2017.
ICI’s Anab Gulaid (in blue headscarf) is interviewed on camera at the University of Minnesota’s Humphrey School of Public Affairs on July 8, 2017.

Anab Gulaid, a public health expert in CEHD’s Institute on Community Integration, was a panelist for Vaccine and Autism: Myths and Facts, a recent town hall forum held to address Somali parents’ concerns about the Measles, Mumps, and Rubella (MMR) vaccine, autism, and the measles outbreak affecting the Twin Cities’ Somali community.

Held on July 8 at the University of Minnesota’s Humphrey School of Public Affairs, the forum was hosted by the Humphrey School and the Voice of America news network, which broadcast the two panel discussions – one in Somali and one in English – to its worldwide audience. The gathering, which was covered by numerous media (e.g., Minnesota Public Radio,  Fox 9 News), was prompted by the measles outbreak tied to low MMR vaccination rates among Minnesota’s Somali community.

See video of the panel discussion in English (which includes a short segment on autism research by CEHD faculty Jed Elison and Jason Wolff) and the other panel discussion in Somali (which includes Anab Gulaid).

Hewitt accepts University’s Innovation Award

Amy Hewitt, holding the award, accepting it on behalf of the DirectCourse team, who are also in the picture.
Amy Hewitt (fifth from right) accepted the award on behalf of the DirectCourse team (pictured).

Crediting her colleagues at DirectCourse, the Institute on Community Integration’s Amy Hewitt accepted a Committee’s Choice Award at the University of Minnesota’s 2017 Innovation Awards on March 28.

Hosted by the University’s Office of the Vice President for Research and the Office for Technology Commercialization, the event at the McNamara Alumni Center recognized 220 University inventors whose technology had been licensed or patented between July 2014 and June 2016. Hewitt’s award was one of only four Innovation Awards presented, all of which recognize the accomplishments of outstanding University innovators who have demonstrated an entrepreneurial spirit, are actively engaged in developing new innovations and transitioning those technologies to the commercial market, and have made an impact on society.

DirectCourse is an online training curriculum designed to empower support and care professionals to help people with intellectual, developmental, physical, and psychiatric disabilities, and older adults, lead meaningful lives within their communities. During last year alone, it provided more than 6 million hours of training to over 500,000 learners in 41 states and abroad.

Hewitt has led the research, development, and management of DirectCourse over the past 15 years, working with a team of staff at ICI, its business partners at Elsevier, and its community roots. “I am delighted that this award recognizes an ‘invention’ that was created by and for the community in alignment with our university’s land grant mission to promote education and collaboration that advances knowledge which benefits communities, the state, and the world,” Hewitt told the gathering. “DirectCourse was not created in a laboratory on campus: the community was its laboratory and this has made all the difference. The learning provided by DirectCourse has had an immediate and lasting effect on hundreds of thousands of direct support professionals and the people with disabilities they support.”

Image of Amy Hewitt in a short video about DirectCourse.
Amy Hewitt speaks about DirectCourse in this short video.

The photograph (at top of post) was taken at the awards ceremony. Pictured, from left to right, are Bill Waibel (Elsevier), Barb Kleist, Jennifer Hall-Lande, Macdonald Metzger, Mark Olson, Barbara Cullen (Elsevier), Merrie Haskins, Susan ONell, Claire Benway, Kelly Nye-Lengerman, Amy Hewitt, Dan Raudenbush (Elsevier), Kristin Dean, David R. Johnson, and Bill Tapp (co-founder). Click here for more information about the awards and a short video.

Nye-Lengerman receives AUCD Young Professional Award

On December 6, Kelly Nye-Lengerman from the College’s Institute on Community Integration received the AUCD Young Professional Award during the AUCD annual conference in Washington, DC. This award is presented to professionals in the disabilities field under the age of 40 who have demonstrated dedication and commitment to people with developmental disabilities and their families through their work as a bridge between the academic sector and the community.

Gulaid joins National Advisory Committee

In October,  Anab Gulaid from the college’s Institute on Community Integration was invited to join the National Advisory Committee for the Diversity & Inclusion Training Action Plan (D&I-TAP), a one-year project funded by the Administration on Intellectual and Developmental Disabilities, Administration for Community Living, U.S. Department of Health and Human Services. The goal of the project is to research, develop, and disseminate a D&I-TAP for the national network of University Centers for Excellence in Developmental Disabilities (UCEDDs), of which ICI is a member. Gulaid’s committee duties began in November.

 

Thurlow speaks at White House convening on education

Martha Thurlow, director of the National Center on Educational Outcomes (NCEO) at the college’s Institute on Community Integration, participated in the White House Convening on Better, Fairer, and Fewer Assessments in Washington, D.c., on Dec. 7.

The convening brought together about 100 representatives from states, districts, and schools, as well as researchers, and assessment developers. The purpose was to discuss how to improve assessments and reduce the burden of redundant assessments, consistent with the Obama Testing Action Plan released in October 2015.

Thurlow (pictured here, center) participated in a panel discussion on better, fairer, and fewer assessments. Representing the “fairer” aspect of the convening, she responded to questions from Gene Wilhoit, director of the National Center for Innovation in Education, and the audience. Thurlow also collaborated with Jose Blackorby of CAST in a breakout session focused on increasing accessibility.

“It was a great opportunity to ensure that the development of innovative assessments and efforts to reduce the number of assessments continue to ensure that the results are fair to all students, including those with disabilities and those who are English learners,” noted Thurlow.

NCEO provides national leadership in designing and building educational assessments and accountability systems that appropriately monitor educational results for all students, including students with disabilities and students who are English Language Learners. NCEO receives funding from the federal government, states, and other organizations.

Abery and Tichá launch project in Armenia

unicef_armenia_400wOn October 9, Brian Abery (left) and Renáta Tichá (center) from the College’s Institute on Community Integration (ICI) began a two-week visit to Armenia to launch Enhancing the Inclusion of Children and Youth with Disabilities in Armenia: University of Minnesota – Armenian State Pedagogical University Partnership, a project that is part of ICI’s Global Resource Center for Inclusive Education. Funded by UNICEF Armenia, the partnering universities are collaborating to ensure that inclusive education practices that were proven in the U.S. can be adapted to Armenia and their usability and feasibility understood in that central Asian country. Rafik Mansour (right), Deputy U.S. Ambassador to Armenia, opened the conference where the partnership was launched, as reported in local media, including The Armenian Post. Susan O’Connor (second from left) and Christopher Johnstone (second from right) also work on the project.

Judge Donovan Frank to keynote MN LEND Forum on litigation for disability rights

Banner image promoting the MN LEND Forum on November 17, 2016.The Minnesota Leadership Education in Neurodevelopment and Related Disabilities Program (MN LEND) at the College’s Institute on Community Integration will present its fall forum, “Litigation: Advancing the Rights of People with Developmental and Intellectual Disabilities” in St. Paul on November 17. The keynote speaker is the Honorable Donovan W. Frank, U.S. District Judge for the District of Minnesota, and long-time champion for the rights of people with disabilities. He will be joined by a panel of local and national legal experts to discuss how litigation is framing and moving forward the human and civil rights of people with intellectual and developmental disabilities:

  • Greg Brooker, First Assistant U.S. Attorney
  • David Ferleger, Attorney with Supreme Court and federal court experience
  • Pamela Hoopes, Attorney, Legal Director at Minnesota Disability Law Center
  • Shamus O’Meara, Attorney, Managing Shareholder at O’Meara, Leer, Wagner & Kohl, P.A.
  • Roberta Opheim, State of Minnesota Office of the Ombudsman for Mental Health and Developmental Disabilities

The event is free and open to the public, but space is limited and registration is required. “MN LEND focuses on improving access to and equity of high quality assessment, services and supports for all children with neurodevelopmental disabilities and their families,” says Amy Hewitt, MN LEND training director. “Litigation has always been key to transforming systems and moving forward the disability rights movement in the United States. We are so fortunate to be able to bring together such an esteemed group of professionals for our MN LEND forum.”

The forum will be on Thursday, November 17 in the Grand Hall at the TIES Event Center, 1644 Larpenteur Avenue West, St. Paul, MN 55108. The program, with a light lunch at the start, runs from 12:30 p.m. – 4:45 p.m., followed by an ice cream reception.

The event will also be filmed and posted on the MN LEND website in the LEND Webinar Archive for later viewing.

$10 million grant awarded to NCEO to improve academic assessments of children with disabilities

NCEO logoThe National Center on Educational Outcomes (NCEO) at the Institute on Community Integration has been awarded a five-year, $10 million grant by the U.S. Department of Education, Office of Special Education and Rehabilitative Services, to continue its knowledge development and technical assistance work focusing on participation and performance of students with disabilities in relation to state and districtwide assessments.

With this new funding, which began October 1, 2016, NCEO will work with its long-time partners, the Council of Chief State School Officers (CCSSO) and the National Association of State Directors of Special Education (NASDSE), and add two new partners, AEM Corporation and WestEd, in its efforts to meet new objectives. Among the new areas of focus is supporting states in their efforts to support districts to improve results for students with disabilities. In addition, NCEO will collect, analyze, synthesize, and disseminate evidence-based information on such topics as inclusive, technology-based, formative, and summative assessments, as well as the use of assessments for instructional decision-making purposes and to ensure implementation of State Identified Measurable Results (SIMRs).

NCEO will continue to provide leadership on the inclusion of students with disabilities, English learners (ELs), and ELs with disabilities in comprehensive assessment systems. It will examine the participation of students with disabilities and ELs with disabilities in national and state assessments and the reporting of assessment information on these students. It will also continue to seek ways to bridge general education, special education, English as a Second Language or bilingual education, and other systems as they work to increase accountability for the results of education for all students, and ultimately, their improved outcomes.

“It is great to have an expanded focus in the five-year grant to continue NCEO’s activities,” says NCEO director Martha Thurlow. “We will work more closely now with states as they support their districts to increase participation in and improve performance on all assessments.” Her colleague, NCEO senior research associate Sheryl Lazarus, agrees, adding, “The new award will support improved instruction and assessment of students with disabilities, resulting in better outcomes and more students being prepared for college and careers.”

ICI partners with Armenian university on new UNICEF-funded project

To promote inclusive education in Armenia, the Institute on Community Integration is building a sustainable partnership with Armenian State Pedagogical University (ASPU), the only university in that central Asian country that trains both general and special education personnel. Armenia is making education more inclusive, triggering a critical need in the country for training, knowledge dissemination, and technical assistance to assist with this endeavor. This has paved the way for a new ICI project called Enhancing the Inclusion of Children and Youth with Disabilities in Armenia: University of Minnesota – Armenian State Pedagogical University Partnership. The 20-month, $150,000 project is funded by UNICEF Armenia and began May 16, 2016. Renáta Tichá is principal investigator and Brian Abery  is co-principal investigator.

In this project, the partnering universities will collaborate to ensure that inclusive education practices proven in the U.S. can be adapted to Armenia and their usability and feasibility further understood. The collaboration will conduct gap analysis of current needs and inclusive practices in ASPU’s education and special education coursework, introduce ASPU faculty to inclusive practices in Minnesota, and build an online learning community (Inclusion Portal). Staff from the two universities will visit each other’s countries, and ICI filmmaker Jerry Smith  will produce a film for the project that documents Armenia’s progress towards inclusive education. “This project is a wonderful opportunity to share expertise and experiences of inclusive education between our two countries, and to build a strong partnership between ICI and a pedagogical university in Yerevan, Armenia,” Tichá says. The project is part of ICI’s Global Resource Center on Inclusive Education.